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Brett and Jeannine Schoenecker Recognized as 2022 ALS Heroes
Community members, Brett and Jeannine Schoenecker, were recently recognized as 2022 ALS Heroes during the Association’s annual Leadership Conference. Their inspiring story demonstrates the amazing courage and determination they have, making a difference for people impacted by ALS and providing hope to those who need it most.
Read the special blog post to learn more about how this couple has impacted our ALS community.
Mobility and Equipment Needs of People with ALS: Results from the ALS Focus Mobility Survey
Monday, April 25, 2022
2:00 p.m. ET
Register here
In the ALS Focus Mobility Survey, people with ALS and caregivers reported which mobility equipment they use, how they covered the costs, and whether the equipment met their mobility needs for ALS. This presentation shares those results.
After registering, you will receive a confirmation email containing information about joining the webinar.
A Phase 2a Study of TPN-101 in Patients with C9ORF72 ALS/FTD
Presented by NEALS (Northeast Amyotrophic Lateral Sclerosis Consortium)
Friday, May 6, 2022
10:30 a.m. – 11:30 a.m. ET
Register here
Presenter: Dr. Merit Cudkowicz, Sean M. Healey & AMG Center for ALS at Mass General Hospital
The purpose of this webinar is to provide an overview of a new clinical study for people living with ALS and a mutation in the C9orf72 gene. We will describe the scientific rationale for the study, the investigational drug (TPN-101), eligibility criteria, and what study participation involves. This webinar will also share contact information for interested individuals to learn more about study participation.
Living with ALS Meeting
Saturday, April 16, 2022
11:00 a.m. – 12:00 p.m. ET
Facilitator: Meghan Chrobak
VIRTUAL ONLY
Caregiver Support Group
Saturday, April 16, 2022
9:30 a.m. – 10:30 a.m. ET
Facilitator: Meghan Chrobak
VIRTUAL ONLY
Resource Group
Wednesday, April 27, 2022
3:00 p.m. – 4:00 p.m. ET
Topic: What Can You Do?
Speaker(s): Kristi Marsili, Kelsey Moschetta
Chapter staff will discuss ways that individuals living with ALS and their families can participate in Chapter advocacy and events.
VIRTUAL ONLY
Powerful Tools for Caregivers
Saturday, May 7, 2022 – Saturday, June 11, 2022
9:30 a.m. – 11:00 a.m. ET
Leader(s): Meghan Chrobak, Kristin Keefe
Powerful Tools for Caregivers is a self-care education program for family caregivers. During the six-week class, caregiver cover topics like stress management, effective communication, self-care, guilt/anger/depression management, and problem solving.
VIRTUAL ONLY
Please RSVP to any Care Services Programs through April Smith at 412-480-5268 or april@cure4als.org
Jane Calmes Scholarship applications are now being accepted!
The ALS Association is now accepting applications for The Jane Calmes ALS Scholarship Fund for the 2022-2023 school year. The fund was established in 2019 to support post-high school education for students whose lives have been impacted by ALS.
Ask Congress to expand funding for ALS research
We launched a campaign in our Advocacy Action Center to enable our grassroots ALS advocates to urge their representatives to support ALS research funding by signing our Dear Colleague letter. You can read the letter here.
Want to become an ALS Advocate? Learn more at als.org/advocacy
2nd Annual Lou Gehrig Day at PNC Park
Friday, June 3, 2022
7:05 PM |PNC Park
Let’s paint the stands red for #ALSAwareness! Join us to celebrate the 2nd Annual Lou Gehrig Day on June 3rd at PNC Park! Reserve your tickets now for a night of Pirates’ baseball as we honor Hall-of-Famer, Lou Gehrig, and spread ALS awareness. Free tickets and t-shirts are available for our ALS community on a first-come, first-served basis!
AND stop by Southern Tier Brewing Company before the game from 4-7PM to enjoy some pre-game refreshments, pick up your tickets, and get your red ALS Association t-shirts!
2022 Walk to Defeat ALS®
Erie Walk to Defeat ALS®
June 18, 2022 | UPMC Park
Johnstown Walk to Defeat ALS®
July 23, 2022 | University of Pittsburgh at Johnstown
Pittsburgh Walk to Defeat ALS®
September 10, 2022 | Point State Park
6th Annual CEO Soak
Thursday, August 11, 2022
12:00 PM | PPG Fountains
The 6th Annual Pittsburgh CEO Soak presented by Hefren-Tillotson is the “dressed up” version of the Ice Bucket Challenge that engages corporate leadership to get soaked while raising money and awareness to benefit The ALS Association Western Pennsylvania Chapter.
Engage your corporate contacts through the CEO Soak. Contact Amie Olson at amie@cure4als.org or 412-593-4950 if interested in getting involved.
Chapter Services
Our Chapter offers a full range of services to guide and assist you as you learn more about ALS.
The ALS Association - Western Pennsylvania Blog 