April 2023

April is National Volunteer Month!

We depend on thousands of volunteers to support our many programs, including care services, advocacy, and fundraising activities. If you or someone you know would like to get involved, learn more about our Volunteer Opportunities.

Your voice counts!

Everything we do at The ALS Association is targeted toward fulfilling our vision of a world without ALS. We want to gather information from everyone that is impacted by ALS, so we encourage you each to complete this survey (as a caregiver, family member, or person living with ALS). Your answers will be kept confidential.

Care Services Survey 2023 (The survey will close on April 21.)

Resource Group

Durable Medical Equipment

Durable Medical Equipment (DME) is a term used to describe items that can support independence in your home and community. There are many items available that can assist with mobility and make it safer when engaging in daily activities. Please join us to hear about some available items that can improve your overall independence.

VIRTUAL ONLY

Thursday, April 27  
3:00 – 4:00 p.m.

To register for this support group please contact April Smith. april.smith@als.org

(Virtual meeting link will be sent to you after registration.)

Caregiver Support Group

Saturday, April 15  
9:30 a.m. – 10:30 a.m. ET

VIRTUAL & IN-PERSON

Please let us know if you are planning to attend in person at our Pittsburgh office – 416 Lincoln Ave., Millvale.

To register for this support group please contact April Smith. april.smith@als.org.

Living with ALS Support Group

Saturday, April 15
11:00 a.m. – 12:00 p.m. ET

VIRTUAL & IN-PERSON

Please let us know if you are planning to attend in person at our Pittsburgh office – 416 Lincoln Ave., Millvale.

To register for this support group please contact April Smith. april.smith@als.org.

Life After ALS Support Group

VIRTUAL & IN-PERSON

If you are interested in joining our Life After ALS Support Group please contact April Smith. april.smith@als.org.

MEDICAL PRESCRIPTION DRUG BENEFITS

Learn about the copays, coverage gap, and catastrophic coverage benefits associated with Medicare prescription benefits.

Monday, aPRIL 24 | 2:00 p.m. ET

Register here
After registering, you will receive a confirmation email containing information about joining the webinar.

MAINTAINING INTIMACY DURING A JOURNEY WITH ALS

ALS impacts many aspects of life; consider options in maintaining, reclaiming, and reinventing active relationships.

Monday, mAY 22 | 2:00 p.m. ET

Register here
After registering, you will receive a confirmation email containing information about joining the webinar.

LEARN MORE: Archived Care Services Webinars

Join the ALS Registry

The National ALS Registry is perhaps the single largest ALS research project ever created and is designed to identify ALS cases from throughout the entire United States.

Most important, the Registry is collecting critical information about the disease that will improve care for people living with ALS and help us learn what causes the disease, how it can be treated and even prevented.

ALS Focus Survey Request

We are measuring the experiences of people with ALS and their caregivers who have sought health insurance coverage of ALS care, services, treatments, equipment, and supplies. Researching these experiences through ALS Focus surveys shows The ALS Association which tools will best support advocacy for stronger coverage of ALS care.

If you know someone with ALS or a current caregiver, please let them know that we want to hear from them at www.alsfocus.org

Local ALS Research Study Participation

The ALS Association would like to share information with you about research studies occurring in the Pittsburgh area.

For more information about current or upcoming studies contact Jill Kerr. jill.kerr@als.org

GET MORE FROM THE ALS ASSOCIATION

Sign up for ALS Association Email! Get the latest ALS news, be inspired to take action, and learn more about how you can create a world without ALS.

Newsletter Sign Up

Listen to the Connecting ALS Podcast

If you haven’t already, make sure to listen and follow the Connecting ALS podcast! This is a weekly podcast produced by The ALS Association. On the channel, you’ll hear the latest in research & technology developments, highlighted advocacy efforts, and personal stories woven through the ALS community.

Connecting ALS on Facebook