December 2022


Congratulations Holiday Party Awardees

We would like to thank those who were able to attend our annual holiday party on December 3, 2022.  For those unable to attend we would like to mention our awardees this year:

Brad McGarry: The Monessa Tinsley-Crabb Voice of Courage Award

Colleen Schaefer: The Rita G. Patchan Volunteer of the Year Award 

Luke & Laura Kelly: The Dr. Sarah W. Wood Advocate of the Year Award 

Keith Pisarcik: The Robert F. Balint Above and Beyond Award 


The International Alliance of ALS/MND Associations has recordings of previous webinars.  Topics include: genetic counseling, voice banking, end of life care, clinical trial designs and many other topics of interest.  

Watch here

Maintaining Family Celebrations During a Journey with ALS

Webinar for the ALS community about maintaining family celebrations during your journey with ALS.

Dec 19, 2022 02:00 PM in Eastern Time (US and Canada)

Register here


Living with ALS Meeting

December 17, 2022  
11:00 a.m. – 12:00 p.m. ET 

VIRTUAL ONLY

Caregiver Support Group

December 17, 2022  
9:30 a.m. – 10:30 a.m. ET 

VIRTUAL ONLY

Smart Home Symposium

Please join us for a virtual symposium on 12/15/22 at 7:00pm. 

Kate Karlovitz will be presenting some commonly used SMART Home items that can improve your comfort and convenience at home.  


RSVP to any Care Services Programs through April Smith at 412-480-5268 or april@cure4als.org


Join the ALS Registry

The National ALS Registry is perhaps the single largest ALS research project ever created and is designed to identify ALS cases from throughout the entire United States. 

Most important, the Registry is collecting critical information about the disease that will improve care for people living with ALS and help us learn what causes the disease, how it can be treated and even prevented.

ALS Focus Survey Request

We are measuring the experiences of people with ALS and their caregivers who have sought health insurance coverage of ALS care, services, treatments, equipment, and supplies. Researching these experiences through ALS Focus surveys shows The ALS Association which tools will best support advocacy for stronger coverage of ALS care. 

If you know someone with ALS or a current caregiver, please let them know that we want to hear from them at www.alsfocus.org

Contact Us:

Jill Kerr, MSW

Phone: 412-707-3340

Email: jill.kerr@als.org

Kristin Keefe, MSW, LSW

Phone: 412-632-4297

Email: kristin.keefe@als.org

Brittany McCall, MSW, LSW

Phone: 412-651-2313

Email: brittany.mccall@als.org

Kate Karlovits, SLP

Phone: 412-295-1221

Email: kate.karlovits@als.org

April Smith

Phone: 412-480-5268

Email: april.smith@als.org


Our former Director of Care Services, Marie Folino, MSW, LSW, has moved into the role of Managing Director of Care Services, overseeing all care management for our region. Rest assured, Marie will remain an integral part of our local work and you will be in good hands with the familiar faces filling her shoes.



Chapter Services

Our Chapter offers a full range of services to guide and assist you as you learn more about ALS.