December 2023

Caregiver Support Group

Saturday, December 16
9:30 a.m. – 10:30 a.m.

VIRTUAL & IN-PERSON

Register here! After registering, you will receive a confirmation email containing the virtual meeting link.

If you would like to attend in person at our Pittsburgh office (416 Lincoln Ave. in Millvale) please contact Ryan Tappe at ryan.tappe@als.org.

2024 Support Group Registration

Living with ALS Support Group

Saturday, December 16
11:00 a.m. – 12:00 p.m.

VIRTUAL & IN-PERSON

Register here! After registering, you will receive a confirmation email containing the virtual meeting link.

If you would like to attend in person at our Pittsburgh office (416 Lincoln Ave. in Millvale) please contact Ryan Tappe at ryan.tappe@als.org.

2024 Support Group Registration

Life After ALS Support Group

VIRTUAL & IN-PERSON

If you are interested in joining our Life After ALS Support Group please contact Ryan Tappe at ryan.tappe@als.org or Jill Kerr at jill.kerr@als.org.

More Options for Virtual Support Groups:

We want to make care services programs and resources accessible to everyone impacted by ALS no matter where they live. If you are unable to make it to your local ALS support group, we offer other opportunities for you to connect with our ALS community virtually every month.

Click the support group you would like to join below to register. After you register, you will receive an email confirmation with the virtual meeting link.

Living with ALS Support Group: December 12| 1:00-2:00 p.m. EST

ALS Support Group: December 12 | 6:00-7:30 p.m. EST

Caregivers Support Group: December 14| 6:30-7:30 p.m. EST

Newly Diagnosed Support Group: December 21| 1:00-2:00 p.m. EST

Caregiver Support Group (for Men): December 21 | 2 p.m. EST

Caregivers Support Group: No group in December | 1:00-2:00 p.m. EST

Caregiver Support Group (for women): January 4 | 2 p.m. EST

ALS Support Group: January TBD | 6:30-8:00 p.m. EST

Care Services Webinars

LEARN MORE: Archived Care Services Webinars

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We value your feedback! Please answer a few questions about your experience with our webinars here.

MORE WEBINAR RESOURCES

Resources & Support

Start YOUR journey today: myalsjourney.org

My ALS Journey™ is a new interactive tool designed to help guide you to necessary resources, advice, and support, if and when you need them. By sharing your specific symptoms as you go, you will be able to stay informed of the latest treatment options and prepare for conversations with your care team.

Join the ALS Registry

The National ALS Registry is perhaps the single largest ALS research project ever created and is designed to identify ALS cases from throughout the entire United States. Most important, the Registry is collecting critical information about the disease that will improve care for people living with ALS and help us learn what causes the disease, how it can be treated and even prevented.

ALS Focus Survey Request

We are measuring the experiences of people with ALS and their caregivers who have sought health insurance coverage of ALS care, services, treatments, equipment, and supplies. Researching these experiences through ALS Focus surveys shows The ALS Association which tools will best support advocacy for stronger coverage of ALS care.

If you know someone with ALS or a current caregiver, please let them know that we want to hear from them at www.alsfocus.org

Local ALS Research Study Participation

The ALS Association would like to share information with you about research studies occurring in the Pittsburgh area.

For information about current or upcoming studies contact Jill Kerr. jill.kerr@als.org

Sign Up for Care Matters

With an ALS diagnosis, there are decisions to make, symptoms to manage, treatment options to evaluate, and adjustments to almost every detail of your daily routine.

Stay up-to-date by subscribing to our quarterly e-newsletter, Care Matters. You’ll receive the latest information about ALS care, disease management and resources to help you navigate your ALS journey.

Together, we will reach our goal of making ALS a livable disease. Sign up TODAY!

View previous issues of Care Matters here.

Sign Up for Research Matters

Our global research collaborations continue to make great strides in the fight against ALS. Stay up-to-date by subscribing to our monthly e-newsletter, Research Matters, delivered to your inbox the last Thursday of each month. You’ll receive information about the latest ALS research discoveries, key advances in technology and new treatment approaches taking place in clinical trials.

Together, we will create a world without ALS. Sign up TODAY!

View previous issues of Research Matters here.