2022 National ALS Advocacy Conference
Thank you to those who recently participated in the 2022 National ALS Virtual Advocacy Conference. The conference provided our ALS community with the opportunity to learn the latest in research and public policy advancements and explore insights on how to influence policymakers and engage legislators.
Want to become an ALS Advocate? Learn more at als.org/advocacy
EVALUATING COGNITIVE CHANGES IN ALS
Monday, June 27, 2022
2:00 p.m. ET
Register here
Beth Rush, PhD, will discuss evaluation of cognitive changes that may be associated with ALS.
After registering, you will receive a confirmation email containing information about joining the webinar.
Living with ALS Meeting
Saturday, July 23, 2022
11:00 a.m. – 12:00 p.m. ET
VIRTUAL ONLY
Caregiver Support Group
Saturday, July 23, 2022
9:30 a.m. – 10:30 a.m. ET
VIRTUAL ONLY
Resource Group
Wednesday, July 20, 2022
3:00 p.m. – 4:00 p.m. ET
Topic: Planning for Summer Trips
VIRTUAL ONLY
Please RSVP to any Care Services Programs through April Smith at 412-480-5268 or april@cure4als.org
One Team. One Mission. One World Without ALS.
Effective July 1, 2022, The ALS Association Western Pennsylvania Chapter has joined the unified ALS Association, moving from a federated chapter to join one single organization. One team with one mission. To support our team, we are now part of a Territory, one of ten nationwide.
This new unified structure is centered around local mission delivery, meaning our services will still be operating at the community level, just as they are today. We will be strategically aligned, fiscally efficient, and community-based. We will stay connected to our community by maintaining our office, staff, clinics, and volunteer networks, while continuing to build upon them.
Meet our Chapter Care Services Team
Jill earned her MSW degree from the University of Pittsburgh in 2003 and has worked in the social work/health care field since that time. She currently lives in the Pittsburgh area with her husband, son and family “cat”. When not working, she enjoys spending time with family, camping, biking and watching her very active child in sports!
Kristin, MSW, has worked in the social work field for 10 years and earned her MSW from the University of Pittsburgh in 2016 and license in 2018. She enjoys spending time with her family, friends, and two dogs – Remy and Gordie (and their brother next door, Monty).
Brittany earned her MSW from the University of Pittsburgh in 2010, and became licensed in 2011. Since then, she has been working as a social worker in various healthcare fields. She lives in the Pittsburgh area with her husband, daughter and french bulldog Lily. When not working, she enjoys spending time with family and cooking (especially big pots of homemade soup).
Kate Karlovits, SLP is the contracted Speech Language Pathologist for our Chapter. Kate specializes in finding solutions for people who are unable to communicate through unconventional means. For those living with ALS, this frequently means implementing the use of Speech-Generating Devices (SGDs).⠀
April has been with our Chapter for close to 4 years. In addition to coordinating monthly Chapter Resource, Living with ALS, and Caregiver Support groups, April is also in charge of our Equipment Loan Program and Transportation Program.
Our former Director of Care Services, Marie Folino, MSW, LSW, has moved into the role of Managing Director of Care Services, overseeing all care management for the Territory. Rest assured, Marie will remain an integral part of our local work and you will be in good hands with the familiar faces filling her shoes.
2022 Walk to Defeat ALS®
Johnstown Walk to Defeat ALS®
July 23, 2022 | University of Pittsburgh at Johnstown
Pittsburgh Walk to Defeat ALS®
September 10, 2022 | Point State Park
6th Annual CEO Soak
Thursday, August 11, 2022
12:00 PM | PPG Fountains
The 6th Annual Pittsburgh CEO Soak presented by Hefren-Tillotson is the “dressed up” version of the Ice Bucket Challenge that engages corporate leadership to get soaked while raising money and awareness to benefit The ALS Association Western Pennsylvania Chapter.
Engage your corporate contacts through the CEO Soak. Contact Amie Olson at amie@cure4als.org or 412-593-4950 if interested in getting involved.
Chapter Services
Our Chapter offers a full range of services to guide and assist you as you learn more about ALS.
The ALS Association - Western Pennsylvania Blog 