NEW LOOK – SAME INFORMATION
Email marie@cure4als.org to tell us what you think!
Fred Abercrombie honored at Community Appreciation Celebration
When someone is diagnosed with ALS, there is no telling how they may react or respond. For some, they keep close to their families and have a private journey. For others, they are more vocal and outward with their experience because they want the world to understand this disease and join the fight against ALS. Fred Abercrombie was a person of the latter, and that is why our Chapter staff and community were honored to award Mr. Fred Abercrombie at our Annual Community Celebration Day with the the Monessa Tinsley-Crabb Voice of Courage Award.
Watch the full event recording
GENETIC COUNSELING IN ALS; THINGS TO CONSIDER
Monday, June 27, 2022
2:00 p.m. ET
Register here
Elizabeth Harrington, MS, CGC discusses genetic counseling and how can it be of value to families living with ALS.
After registering, you will receive a confirmation email containing information about joining the webinar.
Healey ALS Platform Trial Regimen E: A Participant’s Guide
Presented by NEALS (Northeast Amyotrophic Lateral Sclerosis Consortium)
Friday, June 17, 2022
5:00 p.m. ET
Register here
Presenter: Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at Mass General Hospital), Dr. Sabrina Paganoni (Sean M. Healey & AMG Center for ALS at Mass General Hospital), and Dr. Shafeeq Ladha (Barrow Neurological Institute)
The purpose of this webinar was to provide an overview of a new clinical study for people living with ALS and a mutation in the C9orf72 gene. We described the scientific rationale for the study, the investigational drug (TPN-101), eligibility criteria, and what study participation involves. This webinar also shared contact information for interested individuals to learn more about study participation.
Living with ALS Meeting
Saturday, June 25, 2022
11:00 a.m. – 12:00 p.m. ET
Facilitator: Meghan Chrobak
VIRTUAL ONLY
Caregiver Support Group
Saturday, June 25, 2022
9:30 a.m. – 10:30 a.m. ET
Facilitator: Meghan Chrobak
VIRTUAL ONLY
Resource Group
Wednesday, June 22, 2022
3:00 p.m. – 4:00 p.m. ET
Speaker: Kate Karlovits, SLP
Topic: Technology Lab
VIRTUAL ONLY
Please RSVP to any Care Services Programs through April Smith at 412-480-5268 or april@cure4als.org
Welcome Brittany McCall, MSW, LSW!
Brittany earned her MSW from the University of Pittsburgh in 2010, and became licensed in 2011. Since then, she has been working as a social worker in various healthcare fields. She lives in the Pittsburgh area with her husband, daughter and french bulldog, Lily. When not working, she enjoys spending time with family and cooking (especially big pots of homemade soup).
Register for National ALS Virtual Advocacy Conference
June 14-16th
Nationally recognized ALS experts and members of Congress will speak during the National ALS Virtual Advocacy conference. All conference attendees will have the opportunity to engage in targeted advocacy actions throughout the event. Visit www.alsadvocacyconf.org to register today.
Department Of Aging: 2022 Benefits And Rights Book For Older Pennsylvanians Now Available
Pennsylvania Department of Aging Secretary Robert Torres today announced the release of the 2022 Benefits and Rights for Older Pennsylvanians, the commonwealth’s premier guide for information and resources serving older adults on the state and local levels.
Some of the topics included in the book are:
- Insurance
- Legal Services
- Long-Term Care Ombudsman Program
- Protective Services
Lou Gehrig Day
Thank you for helping to celebrate Lou Gehrig’s day ! We had a fantastic time celebrating with friends at the Erie Seawolves and Pittsburgh Pirates games!
Want to become an ALS Advocate? Learn more at als.org/advocacy
2022 Walk to Defeat ALS®
Erie Walk to Defeat ALS®
June 18, 2022 | UPMC Park
Johnstown Walk to Defeat ALS®
July 23, 2022 | University of Pittsburgh at Johnstown
Pittsburgh Walk to Defeat ALS®
September 10, 2022 | Point State Park
6th Annual CEO Soak
Thursday, August 11, 2022
12:00 PM | PPG Fountains
The 6th Annual Pittsburgh CEO Soak presented by Hefren-Tillotson is the “dressed up” version of the Ice Bucket Challenge that engages corporate leadership to get soaked while raising money and awareness to benefit The ALS Association Western Pennsylvania Chapter.
Engage your corporate contacts through the CEO Soak. Contact Amie Olson at amie@cure4als.org or 412-593-4950 if interested in getting involved.
Chapter Services
Our Chapter offers a full range of services to guide and assist you as you learn more about ALS.
The ALS Association - Western Pennsylvania Blog 