June 2023

Durable Medial Equipment Symposium | June 10| 1:00-4:00 PM
Sponsored by Blackburn’s Home Medical Equipment & Supplies

Blackburn’s showroom | Pittsburgh Mills Mall | Tarentum, PA 15084

This symposium will give people living with ALS and their families the opportunity to learn about equipment that can assist them with activities of daily living.

After the main presentation, guests will be invited to participate in hands-on equipment demos and learn more about how to get the equipment they need.

Please register here if you would like to attend.

Caregiver Support Group

Saturday, June 17 
9:30 a.m. – 10:30 a.m.

VIRTUAL & IN-PERSON

Register here! After registering, you will receive a confirmation email containing the virtual meeting link.

If you would like to attend in person at our Pittsburgh office (416 Lincoln Ave. in Millvale) please contact April Smith at april.smith@als.org.

Living with ALS Support Group

Saturday, June 17
11:00 a.m. – 12:00 p.m.

VIRTUAL & IN-PERSON

Register here! After registering, you will receive a confirmation email containing the virtual meeting link.

If you would like to attend in person at our Pittsburgh office (416 Lincoln Ave. in Millvale) please contact April Smith at april.smith@als.org.

Life After ALS Support Group

VIRTUAL & IN-PERSON

If you are interested in joining our Life After ALS Support Group please contact Jill Kerr at jill.kerr@als.org.

Resource Groups

Exploring Nutrition Options for those Living with ALS

July 26 | 2:00-3:00 p.m.

Our resource group meetings are designed to provide education on a variety of ALS care related topics including durable medical equipment, communication & speech devises, respiratory equipment, and other ALS programs & services.

If you are interested in attending one or all of our resource groups please register with the link below. More information about groups topics and meeting details will be emailed to you after registrations.

Register here!

More Options for Virtual Support Groups:

We want to make care services programs and resources accessible to everyone impacted by ALS no matter where they live. If you are unable to make it to your local ALS support group, we offer other opportunities for you to connect with our ALS community virtually every month.

Click the support group you would like to join below to register. After you register, you will receive an email confirmation with the virtual meeting link.

Caregivers Support Group: June 8 | 6:30-7:30 p.m. EST

Living with ALS Support Group: June 13 | 1:00-2:00 p.m. EST

ALS Support Group: June 13 | 6:00-7:30 p.m. EST

Newly Diagnosed Support Group: June 15 | 1:00-2:00 p.m. EST

Caregivers Support Group: June 27 | 1:00-2:00 p.m. EST

ALS Support Group: July 6 | 6:30-8:00 p.m. EST

Powerful Tools For Caregivers

August 16 – September 20 This six-week class meets virtually on Wednesdays from 4:00-5:30 p.m.

If you would like to participate in this class, please register by July 26 so we can order the materials for the class and ensure that you receive them before August 16.

REGISTER HERE

TRANSPORTATION & TRAVEL TIPS FOR PEOPLE LIVING WITH ALS:

Successful travel is optimized by strategically planning for safety and enjoyment. Join us for valuable tips related to travel and transportation.

June 26 | 2:00 p.m.

Register here
After registering, you will receive a confirmation email containing information about joining the webinar.

LEARN MORE: Archived Care Services Webinars

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MORE WEBINAR RESOURCES

My ALS Journey™ is a new interactive tool designed to help guide you to necessary resources, advice, and support, if and when you need them. By sharing your specific symptoms as you go, you will be able to stay informed of the latest treatment options and prepare for conversations with your care team.

**Start YOUR journey today: myalsjourney.org**

**LEARN MORE ABOUT TOFERSEN** | **Tofersen Approval Update**

Join the ALS Registry

The National ALS Registry is perhaps the single largest ALS research project ever created and is designed to identify ALS cases from throughout the entire United States.

Most important, the Registry is collecting critical information about the disease that will improve care for people living with ALS and help us learn what causes the disease, how it can be treated and even prevented.

ALS Focus Survey Request

We are measuring the experiences of people with ALS and their caregivers who have sought health insurance coverage of ALS care, services, treatments, equipment, and supplies. Researching these experiences through ALS Focus surveys shows The ALS Association which tools will best support advocacy for stronger coverage of ALS care.

If you know someone with ALS or a current caregiver, please let them know that we want to hear from them at www.alsfocus.org

Local ALS Research Study Participation

The ALS Association would like to share information with you about research studies occurring in the Pittsburgh area.

For information about current or upcoming studies contact Jill Kerr. jill.kerr@als.org

GET MORE FROM THE ALS ASSOCIATION

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Listen to the Connecting ALS Podcast

If you haven’t already, make sure to listen and follow the Connecting ALS podcast! This is a weekly podcast produced by The ALS Association. On the channel, you’ll hear the latest in research & technology developments, highlighted advocacy efforts, and personal stories woven through the ALS community.

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