March 2022

NEW LOOK – SAME INFORMATION

Email marie@cure4als.org to tell us what you think!


Chris and David Lynn: Care Keeps ALS Families Together

Chris and David Lynn

Before ALS, Chris and David Lynn knew very little about the disease and what to expect. But then they found their local ALS clinic and were connected to The ALS Association Western Pennsylvania Chapter. It was then that they realized that there are great people out there that want to help.

Read their story


Nutritional Considerations in ALS

Monday, March 28, 2022  
2:00 p.m. ET 

Register here

Michelle McDonagh, RD, CD shares valuable information related to maintaining adequate nutrition and maximizing the dietary experience during a journey with ALS.

After registering, you will receive a confirmation email containing information about joining the webinar. 

The ATLAS Study – NEALS ALS Consortium

Monday, March 17, 2022  
2:00 p.m. ET 

Register here

The purpose of this webinar is to provide an overview of the ATLAS study, the  investigational drug, eligibility criteria, and what study participation involves. This webinar will also share resources for interested individuals to learn more about study participation.


Living with ALS Meeting

Saturday, March 19, 2022  
11:00 a.m. – 12:00 p.m. ET 

Facilitator: Meghan Chrobak

VIRTUAL ONLY

Caregiver Support Group

Saturday, March 19, 2022  
9:30 a.m. – 10:30 a.m. ET 

Facilitator: Meghan Chrobak

VIRTUAL ONLY

Resource Group

Wednesday, March 23, 2022  
3:00 p.m. – 4:00 p.m. ET 

Topic: Learn how the Pennsylvania Assistive Technology Foundation assists individuals to obtain funding for Assistive Technology. 

Speaker: Katherine Reim

VIRTUAL ONLY


Thank you to last month’s Resource Group speaker, Jennifer Stoyer: Community & Charitable Trust Coordinator for Achieva Family Trust.

Jennifer Stoyer

412-995-5000 ext. 93

jstoyer@achieva.info

Website

Please RSVP to any Care Services Programs through April Smith at 412-480-5268 or april@cure4als.org


Welcome Kate Karlovits, CCC, SLP to our Chapter Care Services team!

Although Kate is not new to the Chapter, as she has been working as a consultant for almost 10 years, she will now be working part-time with a focus on communication and technology support.

Help us welcome Kate! kate@cure4als.org

2022 ALS Association Advocacy Priorities

Our Advocacy work is heating up at the state and federal levels. Click here to learn about The ALS Association 2022 Federal Public Policy Priorities.

Start making an impact today by signing up for ALS Advocacy Action Alerts.

For local advocacy opportunities, please contact Kelsey Moschetta at kelsey@cure4als.org or 724-316-1504.


Want to become an ALS Advocate? Learn more at als.org/advocacy


Chapter Services

Our Chapter offers a full range of services to guide and assist you as you learn more about ALS.