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May is ALS Awareness Month
Every May, the ALS community bands together for ALS Awareness Month. Through community events, volunteerism, advocacy work, and donations, we’re doing Whatever it Takes to create a world without ALS. To kick off the month, we’re highlighting eight easy ways you can help raise awareness this month and beyond.
Evaluating the Value of Palliative or Hospice Services
Monday, May 23, 2022
2:00 p.m. ET
Register here
Laura A. Foster, MD, Associate Professor of Neurology and Medicine at the University of Colorado School of Medicine will discuss the value of incorporating palliative or hospice services into a strategic healthcare plan.
After registering, you will receive a confirmation email containing information about joining the webinar.
A Phase 2a Study of TPN-101 in Patients with C9ORF72 ALS/FTD
Presented by NEALS (Northeast Amyotrophic Lateral Sclerosis Consortium)
Presenter: Dr. Merit Cudkowicz, Sean M. Healey & AMG Center for ALS at Mass General Hospital
The purpose of this webinar was to provide an overview of a new clinical study for people living with ALS and a mutation in the C9orf72 gene. We described the scientific rationale for the study, the investigational drug (TPN-101), eligibility criteria, and what study participation involves. This webinar also shared contact information for interested individuals to learn more about study participation.
Living with ALS Meeting
Saturday, May 21, 2022
11:00 a.m. – 12:00 p.m. ET
Facilitator: Meghan Chrobak
VIRTUAL ONLY
Caregiver Support Group
Saturday, May 21, 2022
9:30 a.m. – 10:30 a.m. ET
Facilitator: Meghan Chrobak
VIRTUAL ONLY
Resource Group
Wednesday, May 25, 2022
3:00 p.m. – 4:00 p.m. ET
Topic: Chapter Technology Lab
Speaker(s): Kate Karlovits, SLP
Chapter staff will discuss the Chapter’s Technology Lab and how to use technology to help you.
VIRTUAL ONLY
Thank you to Kelsey Moschetta, Kristi Marsili, and Brett Schoenecker for leading our April Resource Group. Watch the full recording now!
Please RSVP to any Care Services Programs through April Smith at 412-480-5268 or april@cure4als.org
Jane Calmes Scholarship applications window is closing soon!
The ALS Association is now accepting applications for The Jane Calmes ALS Scholarship Fund for the 2022-2023 school year. The fund was established in 2019 to support post-high school education for students whose lives have been impacted by ALS.
Save the Date: 2022 National ALS Virtual Advocacy Conference
June 14-16th
Due to the visitor restrictions at the U.S. Capitol Complex, the nation’s largest gathering of ALS advocates will be held virtually in 2022. Stay tuned for additional details!
Join the ALS Registry
The National ALS Registry is perhaps the single largest ALS research project ever created and is designed to identify ALS cases from throughout the entire United States.
Most important, the Registry is collecting critical information about the disease that will improve care for people living with ALS and help us learn what causes the disease, how it can be treated and even prevented.
Become an ALS Advocate
If raising awareness about ALS, advancing policies that improve the lives of people with the disease, and fighting for investments in research to discover treatments light a fire in your heart, you are not alone. Each year, thousands of ALS Advocates across the country help to educate and mobilize their elected officials to support the needs of families living with this disease.
Want to become an ALS Advocate? Learn more at als.org/advocacy
2nd Annual Lou Gehrig Day at PNC Park
Friday, June 3, 2022
7:05 PM |PNC Park
Let’s paint the stands red for #ALSAwareness! Join us to celebrate the 2nd Annual Lou Gehrig Day on June 3rd at PNC Park! AND stop by Southern Tier Brewing Company before the game from 4-7PM to enjoy some pre-game refreshments.
2022 Walk to Defeat ALS®
Erie Walk to Defeat ALS®
June 18, 2022 | UPMC Park
Johnstown Walk to Defeat ALS®
July 23, 2022 | University of Pittsburgh at Johnstown
Pittsburgh Walk to Defeat ALS®
September 10, 2022 | Point State Park
6th Annual CEO Soak
Thursday, August 11, 2022
12:00 PM | PPG Fountains
The 6th Annual Pittsburgh CEO Soak presented by Hefren-Tillotson is the “dressed up” version of the Ice Bucket Challenge that engages corporate leadership to get soaked while raising money and awareness to benefit The ALS Association Western Pennsylvania Chapter.
Engage your corporate contacts through the CEO Soak. Contact Amie Olson at amie@cure4als.org or 412-593-4950 if interested in getting involved.
Chapter Services
Our Chapter offers a full range of services to guide and assist you as you learn more about ALS.
The ALS Association - Western Pennsylvania Blog 