November 2022


November is Caregiver Appreciation Month

November is caregiver appreciation month.  We want to recognize our wonderful caregivers who are selfless, kind, and an inspiration to us all! Everything you do for your loved one is recognized and appreciated.  


ALS Himalaya trial: a global, double-blind, placebo-controlled Phase 2 study to evaluate the efficacy and safety of SAR443820, a RIPK1 inhibitor, in adult participants with ALS

November 9, 2022 / 4:00 pm-5:00 pm

Register here
After registering, you will receive a confirmation email containing information about joining the webinar.

Speakers: Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at MGH) and Dr. Nazem Atassi (Sanofi)


The webinar discussion will include the mechanism of action of RIPK1 inhibition, efficacy in animal models, results from Phase 1 first in human studies, and Phase 2 study design and update on enrollment.


Living with ALS Meeting

November 19, 2022  
11:00 a.m. – 12:00 p.m. ET 

VIRTUAL ONLY

Caregiver Support Group

November 19, 2022  
9:30 a.m. – 10:30 a.m. ET 

VIRTUAL ONLY

Resource Group

November 15, 2022  
3:00 p.m. ET 

Speaker: Charlie Rebich from Open Sesame Door Opener Solutions

VIRTUAL ONLY


RSVP to any Care Services Programs through April Smith at 412-480-5268 or april@cure4als.org


Contact Us:

Jill Kerr, MSW

Phone: 412-707-3340

Email: jill.kerr@als.org

Kristin Keefe, MSW, LSW

Phone: 412-632-4297

Email: kristin.keefe@als.org

Brittany McCall, MSW, LSW

Phone: 412-651-2313

Email: brittany.mccall@als.org

Kate Karlovits, SLP

Phone: 412-295-1221

Email: kate.karlovits@als.org

April Smith

Phone: 412-480-5268

Email: april.smith@als.org


Our former Director of Care Services, Marie Folino, MSW, LSW, has moved into the role of Managing Director of Care Services, overseeing all care management for our region. Rest assured, Marie will remain an integral part of our local work and you will be in good hands with the familiar faces filling her shoes.



Chapter Services

Our Chapter offers a full range of services to guide and assist you as you learn more about ALS.